International LM Registry
A national registry would be just super!! We need to know the incidence/prevalence of this challenging disorder!!
Diane Burke, R.N., B.S.N., Nurse Clinician, Department of Otolaryngology, University of Iowa Hospitals and Clinics
Liam’s Land was established due to the need of an international LM registry to aid research, treatment, and education.
LM is a very rare condition needing more research. The LM registry will provide resources for the study of LM. It will help locate other individuals impacted by this condition, find out what the parents have been exposed to, examine the family’s medical history, track the progress of treatments and procedures in hopes to discover the cause and find a cure.
The International LM Registry will also serve to improve communication of ideas among interested researchers and physicians. This network of information will assure faster distribution of information that may benefit patients and their families.
We thank you for your participation in the registry. The more we learn about LM, the better chance we have to give patients a healthier life.
For LM Patients/Families: Click on registry format of your choice and submit to below email or address.
International LM Registry – Word
Please return registry to firstname.lastname@example.org or mail to:
Liam’s Land Organization
P.O. Box 5715
Savannah, Ga. 31414
Help spread the word!! Pintable Registry Recruitment Flyer below:
LiamsLand Recruitment Flyer